Meet Miss Ellie, a 5 year old girl with spunk and creativity! She loves to sing, draw, and dance in and out of her wheel chair! The greatest part about Ellie is the fact that she is part of an amazing group of strong and courageous souls! This strength and courage derives from the day to day challenges that are the reality of Spina Bifida.
Each of us has his or her own individual story and each story is equally important! As we gather our families together throughout the state of Idaho, we can learn from each other and create bonds that will empower us to strive for hope and continued growth.
I am the mother of an 18 month old little girl, Vivian, who was born with Spina Bifida. She is a wonderful little thing, but when I was diagnosed with having a child with special needs it was very scary. I wish I had the opportunity to talk to a parent who has a child or an adult living with Spina Bifida, especially during that time.
Vivian is absolutely perfect and having a child with Spina Bifida is nothing like what I imagined. I want to make sure my daughter can have friends and acquaintances growing up who experience the same type of lifestyle she has.
I live in Meridian and am a stay-at-home mom and a part-time certified professional accountant. In April, my husband and I joyously welcomed our third daughter, Eliza, who was born with spina bifida. From prenatal diagnosis through birth and surgeries to current everyday miracles and milestones, this year has been a whirlwind of extraordinary blessings and challenges.
We want to support our sweet baby girl as she grows and surround her with knowledge and peers. I'm so excited to connect with other Idaho families who have also been touched by spina bifida!